You can make a difference!
While plenty of information is available about cleft lip and palate and other craniofacial conditions, getting that information out to those who need it...when they need it...can be a challenge. How many times have you thought, "I wish I had known about this website three years ago." Or, "If only I had someone to talk to after my baby was born...someone who understood what I was going through"?
The Pathfinder program is designed to address these issues on a local basis and is overseen by the most important person on your child's cleft/craniofacial team...YOU!
We are NOT a traditional support group!
Support "groups" are often associated with a monthly meeting at a particular time and location, and perhaps a special event once or twice a year. But here at AmeriFace, we like the NETWORK approach much better (good examples are our on-line entities at the Family-To-Family Connection and crouzon.org)! We want folks to realize that when a question comes up on a Tuesday night or a Saturday afternoon, it's nice to be able to call a local buddy, or jump on-line and get a parent's point-of-view. Read our disclaimer.
So when visualizing the Pathfinder Outreach Network, think Support NETWORK, not support group!!!
An Overview of the Pathfinder Outreach Network
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